a little background

hi, my name is mandy and I have two amazing little boys. My oldest son, Ty, has been diagnosed with autism (which is what you will read most about in this blog); I also have Tripp, who is an amazing little brother to Ty (who you will also hear alot about). I was encouraged to start this blog to document our journey through life and life with autism... my world has been rocked in last few years and i have responded in good ways and bad ... but Jesus has gotten me through all of it...

i hope i can be an encouragement to you, and for the friends and family that will read this - maybe this will keep you posted indepth on what Ty is learning! :) and the adventures of Tripp too

thank you for reading, and if you have any questions, comments or smart remarks; feel free to post them.

Wednesday, January 9, 2013

transition into school

So most of our journey with Ty has been in home therapies and the amazing Children Center at USM in hattiesburg. We recently added Will's Way of hattiesburg to his weekly list as well.  But it wasn't easy getting here.  I learned real quick that if you want something for your child then you will have to fight for it.  There are places and centers that are just amazing (those listed above for example) but there are also schools and centers that have great programs and are not willing to let you in because of where you live.  It shouldn't be like this. I feel that children with special needs should be allowed to choose the school that fits their needs. If every school put forth the same effort then there would be no need for this. However, most schools do just enough to get by. I have been told that they(a school) only have to provide a "Chevrolet" of services and not a "Cadillac"?! Really?! This infuriates me, how can you tell me that you are providing just enough therapy and services to get by, just enough to keep people off your back and that you are not willing to fight and provide the best??? How can I willingly allow my child to attend a school that has basically told me that they don't want to work, they don't want to challenge Ty to get the best out of him?! I know lots of teachers and I think they are all amazing to even go into this profession and special needs teachers are even held higher in my book. I know it's hard but don't take it out on the kids. I know that teachers aren't given the credit they deserve and that it is a job that comes with few rewards but know that this momma appreciates a good teacher. I know that if you teach you deal with so much more than classroom prep and children. You get worn out, you wonder if its worth it. But if you touch one life because you did your best, then it is worth it all!

I think that schools should be held higher standards and that one school should not be better than another, especially within a 30 mile radius. Why would they not all be able to offer the same services. Why would they not be able to offer the best services? Why would they not want to??? I just don't get it. It's going to be so hard to send Ty to Kindergarten in August. I am worried about him regressing, I worry about him not being cared for properly, what if he isn't challenged? What if they mistreat him? What if they don't care? I can fight for a lot of things and I will. But it shouldn't have to come to that. It shouldn't come down to IEP meetings and arguing to get something that my son needs and that other children like him need. Administrators shouldn't be seen as barriers to get through to get into good places. I shouldn't have to search for loop holes. Everyone wants the best for their children so why is the best dangled on a string and only the one that jumps the highest or grabs a ladder gets the prize?

I have made phone calls and been in "interviews" trying to get Ty into the best place I can find. But I feel like I'm on trial, trying to prove that he needs it?! Trying to explain what he can and can't do and what I think he needs. At the beginning of these meetings I am nice and try my best to ask all the right questions and get all answers I need without breaking into a female version of The Hulk. At the end of these meetings, I often feel like they look at me as a problem. They see me as someone who will not be satisfied so then why would they want to deal with me? Shouldn't they want parents that are involved? Shouldn't they also want my son to receive the best care possible so that he can learn and grow and be loved???

I'm all over the place in this post but I have so much to say and I am doing my best to say it without being offensive?! lol

On another note we are currently in a new Daycare center and things are wonderful! They have really taken to Ty and he seems to be doing really well :) And like I said earlier we are also still at the Children's Center and Will's Way in hattiesburg and things are going great there too! :)

thanks for reading! :)

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