a little background

hi, my name is mandy and I have two amazing little boys. My oldest son, Ty, has been diagnosed with autism (which is what you will read most about in this blog); I also have Tripp, who is an amazing little brother to Ty (who you will also hear alot about). I was encouraged to start this blog to document our journey through life and life with autism... my world has been rocked in last few years and i have responded in good ways and bad ... but Jesus has gotten me through all of it...





i hope i can be an encouragement to you, and for the friends and family that will read this - maybe this will keep you posted indepth on what Ty is learning! :) and the adventures of Tripp too





thank you for reading, and if you have any questions, comments or smart remarks; feel free to post them.



Wednesday, November 14, 2018

ramblings and iep meetings

There are a lot of things I need to be doing right now. I have an essay and a paper to write but I keep racking my brain and decided maybe if I blog it'll help me process it all. It's my therapy. So yesterday I had a couple of meetings at the school. One was about Ty's toileting habits, they are still a work in progress. The other was about his eligibility for services at school. Let me start by telling you how amazing this team of teachers and therapists are - they really are phenomenal. The dedication, determination and ability they have to read their students blows me away. As I sat and listened to them talk about Ty and how they wanted to make sure we were all on the same page so that Ty is pushed and challenged and expected to do the same things everywhere; my mind kept running. I rack my brain daily on what to do for him. After the meetings were over, I went home and cried. Not because they did anything wrong because they didn't. They are doing everything right, to a T! I broke because it's overwhelming. There's so much to process and so much that needs to be done and so much of it seems like I should have had it done yesterday, last week, last month, last year, etc. As a parent none of us ever feel like we are doing any of it right so I don't expect to have all the answers. But oh what I would give to have the answers. What I would give for just a day inside Ty's head. Heck I'd take an hour if I could get it. There's so much I want to know. So when I come out of those meetings and everything I already know is shown on paper and discussed the only thing left for me to do is break. I am sure I already appear to be hanging by a thread on a 'normal' day ha!(what's normal right?) I can't imagine what I look like on a day like yesterday?! Those meetings are just exhausting, I don't know how those teachers and therapists do it?! They have to have those meetings for all their students?! They really blow me away.

So one of the things I need to find is a toy or a prize for Ty. It needs to be enticing to him. The best thing ever! A strength and weakness of Ty is that - at times he just doesn't care. If he's in trouble and isn't allowed to have his "favorite" things, oh well, that's not his favorite thing anymore. I remember when he was little, I use to always say that he didn't have that "one" thing that he fixated on. Most kids with autism have something that becomes their "thing", cars, trains, dinosaurs, piano, drums, etc. But Ty was always content with just about anything. He loved rocks, pictures, minions, balls, doors, plates, bowls, spoons, two of just about anything but there wasn't a "oh this is his thing". So finding a toy that can be a reward to entice Ty to comply with our requests is quite a challenge. If I'm honest, sitting here typing about it has got me a bit anxious - when I sit down to type a blog I never really know where it's gonna go. I start with an idea or things going on in my head. But once I start typing it all just kind of comes out. I delete most of it, ya'll would for sure send me away if all my thoughts made it here ha!

As I process all the information at these meetings, I go back and forth between, 'yeah I've got this and I can do that' to 'what in the world am I doing and why have I been trusted with something so important'. I know everyone has probably felt that way at some point and time in their life?! Right?! So I guess all of that to say, I think we have come a long way but we also have a long way to go.